Nice Ormond Avenue Hospital for Kids is one among six main European kids’s hospitals to collaborate on the PHEMS undertaking, aiming to revolutionise how kids’s well being information is managed and used to assist advance analysis and innovation within the subject.
The paediatric hospitals as European drives for multi-party computation and artificial information technology capabilities throughout scientific specialities and information sort undertaking – shortened to PHEMS – is ready to run till September 2026. It has obtained a complete of €7m in funding from the Horizon Europe programme and from UK Analysis and Innovation.
The undertaking will discover the event of knowledge collaboration in a approach that protects affected person data. It goals to beat the limitations that at present hinder collaboration on well being information between completely different nations. It can develop and validate a decentralised well being information ecosystem, supporting the evaluation of well being information throughout geographical borders, whereas the information stays in its authentic location.
By doing so, it will probably play its half in helping the event of recent therapies for kids, the evaluation of care outcomes and the development of recent applied sciences, akin to AI, in healthcare for kids.
Katariina Gehrmann, director of digital and innovation companies at HUS New Kids’s Hospital in Helsinki, Finland, which is main the consortium, mentioned, “We are going to allow European collaboration on well being information by aligning moral and authorized necessities of main European paediatric hospitals with the wants of knowledge customers. This ensures that researchers can profit from wealthy datasets and advance scientific analysis in paediatrics whereas the affected person’s rights and information privateness stay protected.”
The collaborative undertaking will obtain this by creating new technological options to permit authorised entry to well being information at a number of areas. It can additionally develop shared guidelines and governance buildings, permitting new companions to hitch and new datasets to be included within the ecosystem.
Nice Ormond Avenue Hospital for Kids is main the primary scientific use case, which is able to benchmark the operational administration of cardiology affected person pathways in 4 hospitals. It is going to be utilizing a standardised information mannequin referred to as Observational Medical Outcomes Partnership.
Professor Andrew Taylor, director of innovation at Nice Ormond Avenue, mentioned: “GOSH is a world centre of excellence and with our first-of-its variety Information Analysis, Innovation and Digital Environments unit we’re one of the digitally superior hospitals in Europe.
“It’s thrilling and an actual testomony to our digital maturity that we’re ready to be a part of this undertaking. Working with the opposite main European paediatric hospitals, we try to advance information collaboration to boost healthcare companies for kids throughout Europe, while making certain privateness of affected person information.”
Working with Nice Ormond Avenue is HUS Helsinki College Hospital (Finland); Erasmus Universitair Medisch Centrum Rotterdam (Netherlands); Azienda Ospedaliero-Universitaria Anna Meyer in Florence (Italy); Bērnu klīniskā universitātes slimnīca (Latvia); and Hospital Sant Joan de Déu in Barcelon (Spain). The PHEMS consortium additionally consists of three expertise companions: Tieto Finland Oy (Finland), Aridhia Informatics Restricted (UK) and VEIL.AI Oy (Finland) and two skilled companies companions: The Hyve B.V. (Netherlands) and Genesis Biomed (Spain).